I have so many posts started that I never post because I use this to vent as much as tell my story. I have tried so many things in the past 2 years that have not worked.
Bee Pollen. Sounds like as good a theory as any. Some specific enzyme helps breakdown the biofilm or weakens the buggers or some other thing. So I tried bee pollen. Researched what brands to take, how to ensure it was good quality, where the best bee pollen in the world can be found etc. At the time I was even getting routine body work like reikki and lymph massages etc and the therapist lives on a farm and has bee hives. She was even willing to bring me the bee pollen. Well it just made me sick. Sick and sicker. If you look up the nutritional data on bee pollen it actually has a pretty high carb content. It set me off everytime.
Which leads me to the question of die off or feeding reaction. I think I have lived with this bugger long enough and tried enough things that I know if it is an attack or die off but every now and then I wonder. For me die off is d, cramping, pain at my two hot spots. An attack always comes with more. Feeling beyond sick, stomach pains, multiple episodes of d, feeling weak and nauseous and super light headed.
I tried alinia for almost 21 days. Saw a doc (nutrionist who consulted with some well known gastro's) who said single therapy of this drug for 21 days would do the job. I can't even begin to describe how sick I became. Lost a pound a day. And in the end made the infection even worse. Now I have 2 hot spots or colonies I can actually feel and not just the one.
Rain Forest A-P Amazon herbal blend. This was amazing last fall and in December I was able to eat cauliflower and even red potatoes. So good that I tapered off and stopped. And back worse then ever I use to be able to take some herb or other and knock it down and stay status quo. Now this monster has adapted to the point where when I taper off anything and some times before it just becomes worse.
Went back to my rife machine for a bit with no real change.
When I take the A-P I think I get die off but I never seem to improve.
Then I tried momolaurin. And I thought I had found the answer. And maybe it would have been the answer if I had stayed on it longer and had starved myself and eaten nothing. But it reduced the infection almost immediately and I started to binge eat. I have often said to my husband that if I ever clear this infection I am either going to gain 100 pounds or become bulimic because I have been deprived of taste and texture (oh yeah and nutrients) for so long I am not going to be able to stop. So I went on binges and ate hershey kiss after kiss. And then I wanted chocolate chip cookies. Not from a store as I knew the preservatives would set me off but homemade where I controlled the ingredients. So I made batch after batch for several weeks in a row and slowly built the infection back up to where I tolerated nothing.
I have also read about a possible connection to protease and a theory behind protease inhibitors. Well the only natural anything I can find connect to protease inhibitor is ancillin found in garlic. So I again researched and found a product that is buffered so it makes it past the stomach and is also supposed ot be time released. I have been on it for just over a week and at first I thought ok going good. I would take it and have an issue. Usually moving my bowels but other symptoms like pain at the 2 hot spots and nausea. So I kept taking it. And now as I sit here closing in on midnight in a full all out flare I think it was a bad idea. By now I should have had a noticeable step reduction in symptoms.
I can't believe how bad this has become. One other reason I do not think it is die off is because with die off, like oil of oregano or ozone the symptoms are just different.
Oh yeah I forgot to mention ozone. Well maybe I did in another post but I don't think so. I tried ozone and had great die off but I just could not afford it frequently enough to make a real dent. I do however think it could be combined with other treatments to create a comprehensive treatment plan. Be prepared for cost and time though.
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