I have so many posts started that I never post because I use this to vent as much as tell my story. I have tried so many things in the past 2 years that have not worked.
Bee Pollen. Sounds like as good a theory as any. Some specific enzyme helps breakdown the biofilm or weakens the buggers or some other thing. So I tried bee pollen. Researched what brands to take, how to ensure it was good quality, where the best bee pollen in the world can be found etc. At the time I was even getting routine body work like reikki and lymph massages etc and the therapist lives on a farm and has bee hives. She was even willing to bring me the bee pollen. Well it just made me sick. Sick and sicker. If you look up the nutritional data on bee pollen it actually has a pretty high carb content. It set me off everytime.
Which leads me to the question of die off or feeding reaction. I think I have lived with this bugger long enough and tried enough things that I know if it is an attack or die off but every now and then I wonder. For me die off is d, cramping, pain at my two hot spots. An attack always comes with more. Feeling beyond sick, stomach pains, multiple episodes of d, feeling weak and nauseous and super light headed.
I tried alinia for almost 21 days. Saw a doc (nutrionist who consulted with some well known gastro's) who said single therapy of this drug for 21 days would do the job. I can't even begin to describe how sick I became. Lost a pound a day. And in the end made the infection even worse. Now I have 2 hot spots or colonies I can actually feel and not just the one.
Rain Forest A-P Amazon herbal blend. This was amazing last fall and in December I was able to eat cauliflower and even red potatoes. So good that I tapered off and stopped. And back worse then ever I use to be able to take some herb or other and knock it down and stay status quo. Now this monster has adapted to the point where when I taper off anything and some times before it just becomes worse.
Went back to my rife machine for a bit with no real change.
When I take the A-P I think I get die off but I never seem to improve.
Then I tried momolaurin. And I thought I had found the answer. And maybe it would have been the answer if I had stayed on it longer and had starved myself and eaten nothing. But it reduced the infection almost immediately and I started to binge eat. I have often said to my husband that if I ever clear this infection I am either going to gain 100 pounds or become bulimic because I have been deprived of taste and texture (oh yeah and nutrients) for so long I am not going to be able to stop. So I went on binges and ate hershey kiss after kiss. And then I wanted chocolate chip cookies. Not from a store as I knew the preservatives would set me off but homemade where I controlled the ingredients. So I made batch after batch for several weeks in a row and slowly built the infection back up to where I tolerated nothing.
I have also read about a possible connection to protease and a theory behind protease inhibitors. Well the only natural anything I can find connect to protease inhibitor is ancillin found in garlic. So I again researched and found a product that is buffered so it makes it past the stomach and is also supposed ot be time released. I have been on it for just over a week and at first I thought ok going good. I would take it and have an issue. Usually moving my bowels but other symptoms like pain at the 2 hot spots and nausea. So I kept taking it. And now as I sit here closing in on midnight in a full all out flare I think it was a bad idea. By now I should have had a noticeable step reduction in symptoms.
I can't believe how bad this has become. One other reason I do not think it is die off is because with die off, like oil of oregano or ozone the symptoms are just different.
Oh yeah I forgot to mention ozone. Well maybe I did in another post but I don't think so. I tried ozone and had great die off but I just could not afford it frequently enough to make a real dent. I do however think it could be combined with other treatments to create a comprehensive treatment plan. Be prepared for cost and time though.
Sunday, November 29, 2015
Saturday, August 22, 2015
OMG - ozone might not have been the best idea
Aug 2015
And here I am approaching my 17th anniversary with this monster. I can't tell you the exact date just sometime between my child's birth and first birthday, closer to the fall of that year I think.
I have many posts in drafts and maybe I'll just publish them as is but this is about today. Been up since 5 and am having a huge huge attack. These days, as in the last year or so, they are not always 4 hour trigger attacks, but sometimes 5 or 6 hours later.
I ate a tomato last night with my 10:00 evening meal. Tomatoes used to be one of the foods I could tolerate. But not any more.
I have tried several things over the past few years and my latest backfired. I have read other testomonials when people have stopped an herb or finish the meds the infection seems to come back worse and boy is that the case with me.
So I started on these herbs last Nov. I had done a program from Healing Within many years ago and I stayed on the herbs for a year because they held it at bay. I found a new doc in chicago and he thought mold was one of my problems and wanted me to go off all herbs so he could accurately test me. Anyway ( long stories I know but isn't that the case with any of us with this terrible parsite inflicted disease), I called them again to see if they had anything new. They have some minor success with blasto treatment. So I went on herbs from "rain forest pharmacy"; A-P and Simarouba. Amazing. They were so clearly potent and by the holiday's I was eating cauliflower and red potatoes with garlic and rosemary - heaven really.
Mean while my functional medicine doctor has been studying ozone therapy. The vast majority of his patients are lyme patients. So I research and read and decide to give it a try and from the first treatment I have die off. I did over 2 dozen and each time like clock work 48 hours later I had serious dies off. But I have extremely low blood pressure and only one vein for the injections so had to stop. I had no adverse issues stopping probably because the dosing had been so small and infrequent.
We discussed treatments where I could chose from either rectal insulflation or vaginally. And so after buying the equipment off I go. I opted for vaginally and in the beginning had die off. This went on for a few weeks and then I had nothing. No twinge, no intestinal movement like it was being annoyed, no cramping or hot spot twinges. And then it really seemed like I was actually getting worse.
I stopped 5 days ago and now I am sicker than I have ever been. I tolerate nothing but chicken and pumpkin and zucchini. I have sat in parking lots this week and cried because grocery stores are out of zucchini and it is all I can eat. I have also gone back to the herbs and while they still seem to bother it, it is clear that they are not nearly as potent. Time to try and find something else. For today though I am going to bring oil of oregano back to see what happens. 10 years ago it was my golden ticket for a year.
I know everyone with blasto seems to have a variation of symptoms and have had it for different periods of time and have different strains etc. It is almost like our finger prints - unique to each one of us. But I am in the Ozone does not work camp. I even read an actual scientific article that not all life stages were susceptible to ozone and it would basically be able to stay put until the ozone dissipated.
Who knows. At some point I think I might start trying to perform research myself.
Until next time - here's to the hopes that you can eat more than chicken today and to having enough faith to believe in healing
And here I am approaching my 17th anniversary with this monster. I can't tell you the exact date just sometime between my child's birth and first birthday, closer to the fall of that year I think.
I have many posts in drafts and maybe I'll just publish them as is but this is about today. Been up since 5 and am having a huge huge attack. These days, as in the last year or so, they are not always 4 hour trigger attacks, but sometimes 5 or 6 hours later.
I ate a tomato last night with my 10:00 evening meal. Tomatoes used to be one of the foods I could tolerate. But not any more.
I have tried several things over the past few years and my latest backfired. I have read other testomonials when people have stopped an herb or finish the meds the infection seems to come back worse and boy is that the case with me.
So I started on these herbs last Nov. I had done a program from Healing Within many years ago and I stayed on the herbs for a year because they held it at bay. I found a new doc in chicago and he thought mold was one of my problems and wanted me to go off all herbs so he could accurately test me. Anyway ( long stories I know but isn't that the case with any of us with this terrible parsite inflicted disease), I called them again to see if they had anything new. They have some minor success with blasto treatment. So I went on herbs from "rain forest pharmacy"; A-P and Simarouba. Amazing. They were so clearly potent and by the holiday's I was eating cauliflower and red potatoes with garlic and rosemary - heaven really.
Mean while my functional medicine doctor has been studying ozone therapy. The vast majority of his patients are lyme patients. So I research and read and decide to give it a try and from the first treatment I have die off. I did over 2 dozen and each time like clock work 48 hours later I had serious dies off. But I have extremely low blood pressure and only one vein for the injections so had to stop. I had no adverse issues stopping probably because the dosing had been so small and infrequent.
We discussed treatments where I could chose from either rectal insulflation or vaginally. And so after buying the equipment off I go. I opted for vaginally and in the beginning had die off. This went on for a few weeks and then I had nothing. No twinge, no intestinal movement like it was being annoyed, no cramping or hot spot twinges. And then it really seemed like I was actually getting worse.
I stopped 5 days ago and now I am sicker than I have ever been. I tolerate nothing but chicken and pumpkin and zucchini. I have sat in parking lots this week and cried because grocery stores are out of zucchini and it is all I can eat. I have also gone back to the herbs and while they still seem to bother it, it is clear that they are not nearly as potent. Time to try and find something else. For today though I am going to bring oil of oregano back to see what happens. 10 years ago it was my golden ticket for a year.
I know everyone with blasto seems to have a variation of symptoms and have had it for different periods of time and have different strains etc. It is almost like our finger prints - unique to each one of us. But I am in the Ozone does not work camp. I even read an actual scientific article that not all life stages were susceptible to ozone and it would basically be able to stay put until the ozone dissipated.
Who knows. At some point I think I might start trying to perform research myself.
Until next time - here's to the hopes that you can eat more than chicken today and to having enough faith to believe in healing
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