First if any of you fellow suffers (plug in any adjective you like to describe your current situation with blasto) also have c.diff.....please let me know how you mange both infections. I just go back and forth from one to the other being active.
So I have, over 18 years now, developed some very predictable symptoms. Sometimes it is very hard to tell between the two infections because there is overlap but most of the time they are distinguishable. And night sweats is one that solely belongs to blasto. I know when I have agitated it and it produces night sweats that soak the back of my neck and my hair. I wake up jolted and feel so agitated. And then I feel cold on the back of my neck and when I reach around I am soaked.
Another bizarre symptom I get are blood blisters in my mouth. I have these huge crazy blood blisters and I just wonder if the strain of this bad bug I have is actually somehow viral as well as parasitic. Or maybe it an undiagnosed co-infection. I have been tested so many ways for so many different things and I have been on so many round of drugs and herbs to clear infections that I have a hard time thinking it is a co-infection. PLus the only things showing up over and over is blasto.
Of course there is the d when I eat fructose, the cramping when I eat sugar and the excessive gas when I eat carbs. And the bloating when it is really in charge.
I also have these crazy body shakes which I also get with c.diff and make it hard to tell which one with just the symptom singled out. The shakes are more like an overload of the toxins that are then coursing through my veins. I keep saying to myself I need to get on some milk thistle. The shakes keep me up all night
An interesting theory in my household is the effect stress has on me. I get so angry at the medical system when they blame stress. And while I do believe stress can have short term acute effects like d or tummy issues and headaches, and while I do believe constant stress can have long term effects on heart and immune system, I absolutely do not believe that stress causes a parasitic infection. I mean this is just no way stress materializes another living organism inside your body whose sole purpose is to compromise your body so it survives.
Monday, September 11, 2017
Friday, April 14, 2017
Why can't we get proper treatment
Happy Friday. The year is 2017 and I have been doing some google searching about how to get the meds I need to kill this horrible parasite so I can have a different life. Different from the lst 18 years where I have been sick from this unbelievable disease causing parasite. I happen to live in the US It amazes me that other countries and I mean countries where the worldwide pharmaceuticals have R&D, consumer health and manufacturing sites. They produce the same drugs under different names distributed to different countries and yet the same treatment available in one location is not available in another. country. The US does not have any reciprocity with any of these other countries. And while I appreciate the higher level function of this governmental organization to protect the greater population, it is ridiculous that these meds are not allowed in the US. These are possible treatments that would improve our lives, give us better quality living, increase our productivity for the companies we work for, reduce our spending on health care, all good things.
Why not let the population who is sick with this have access to the medicines that can potentially kill it?
Just a thought.
Why not let the population who is sick with this have access to the medicines that can potentially kill it?
Just a thought.
My Experiment with a Heat Lamp
Hello Fellow Blasto Suffers, this bug is just awful isn't it!!?? I had done some research a bit ago about nutritional balancing. For those of you unfamiliar this is not just following the food pyramid or cutting out sweets et. It is a sorta science in taking supplements and eating a diet the combines the right combination of vitamins and minerals so they are working in balance within your body. part of the comprehensive program includes detoxifying. And one of the way to detoxify ifs with a sauna, to be specific an infrared sauna to sweat out toxins. So I figure nothing to loose everything to gain and invest in a beautiful USA made portable infrared sauna and a single infrared heat lamp that I can concentrate. Well in the midst of all this research is data suggesting that pathogens don't survive under the waves of the red heat lamp. So I spend dedicated time each day for a week or maybe more like 9 days with the single heat amp targeted at my colon. And ever so slowly things start to change, but . I feel a lot of colon twitching and them serious abdominal pain and tehn bloating and tons of pressure. And then crzainess with my bowels. It turns out I had actually made my infection worse with this test of the theory of infrared heat lamps. My theory is similar to that of the studies out there on flagyl.
Wow I was just doing my usual ealry morning pacing when I get an attack and can't believe how fast it becomes light out. I have been in this situation doznes of times over the years and I am always amazed at the early morning twilight when it twinkles and then so quickly becomes bright with the days light.
Back to the heat lamp. For my strain of blasto it made it sorse. It was like it was under attack and disable some of teh bug in one of its stages but all that did was make the rest retreat into thier harc shell cyst and then start reproducing. The abdominal pain was serious. Ad my entire colon was like one huge sausage roll and then of course came the cramping, gut pain, d etc. And it took days for ti to all settle back down.
I really believe from personal experimentation, that unless you are lucky to have the arsenal of combination that is fatal to all stages of the mother of all parasites, that it is intelligent enough to have a survival mechanics that allows it to hide in its cyst form an, protecting itself and then reproducng making you sicker.
I am always sicker when I try something that doesn't work.
In these situation where I have angered it, I have different symptoms then when I eat something that gives me an attack like a piece of fruit, or when I just slow down on a certain supplement. Some supplements just reduce the infection and then it builds back up. Other treatment strategies give me a different set of symptoms as though I have angered the beast instead of reduced th infection.
The heat lamp angered it.
Wow I was just doing my usual ealry morning pacing when I get an attack and can't believe how fast it becomes light out. I have been in this situation doznes of times over the years and I am always amazed at the early morning twilight when it twinkles and then so quickly becomes bright with the days light.
Back to the heat lamp. For my strain of blasto it made it sorse. It was like it was under attack and disable some of teh bug in one of its stages but all that did was make the rest retreat into thier harc shell cyst and then start reproducing. The abdominal pain was serious. Ad my entire colon was like one huge sausage roll and then of course came the cramping, gut pain, d etc. And it took days for ti to all settle back down.
I really believe from personal experimentation, that unless you are lucky to have the arsenal of combination that is fatal to all stages of the mother of all parasites, that it is intelligent enough to have a survival mechanics that allows it to hide in its cyst form an, protecting itself and then reproducng making you sicker.
I am always sicker when I try something that doesn't work.
In these situation where I have angered it, I have different symptoms then when I eat something that gives me an attack like a piece of fruit, or when I just slow down on a certain supplement. Some supplements just reduce the infection and then it builds back up. Other treatment strategies give me a different set of symptoms as though I have angered the beast instead of reduced th infection.
The heat lamp angered it.
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