I know when I not feeling well and my disease is acting up, if that is what I am going to call it today, because I wake up early. I am almost jolted out of bed, well off the sofa. I know I was doing so much better last week because I not only slept through the night but slept in our bed instead of the sofa.
Yes I am a sofa sleeper. It started after the birth of our second and I did not want to wake everyone up in the middle of the night. Well before that there was the fear of climbing the stairs recovering from a c-section. Then the mid night feedings. Then the becoming sick all over again with c.diff.
This morning however feels more like a blasto thing. My hot spot on my lower right side is really a big knot. I was jolted awake by this weird dream. Don't even think I remember it all that clearly. And then the stupid shakes are kinda here.
I wish I had never ever touched that stupid entemenns raspberry danish on Sunday. I ruined everything. I was tolerating culturelle and align and as most of you suffering with blasto know probiotics set you off. But the dificid did something and changed my gut ecology enough that I was tolerating them and think I was starting to overcome the c.diff. Now I am scared to take one. I need the blasto back under control.
What a drag. I wonder if there is a high suicide rate with long time sufferers. Really makes quality living so very very hard.
And I was up late the night before too because I felt bad and could not fall asleep. and now up early today. I will lie back down and maybe turn the tv on and see if re-runs of cheers are still on.
I am sick with a very hard to treat parasite blastocystis. This is my new place to rant and rave and vent which I do most often when I have late night attacks. I have been sick for 17 years now and have so many stories to tell revolving around living life with blasto
Wednesday, August 14, 2013
Monday, August 12, 2013
don't eat entemann raspberry danish
Really it is not worth it. I did. why oh why. I am not even sure when the last time was I posted. Life has been busy. Using my alternative approaches to try and keep this beast under control. And trying to manage c.diff. Been busy with a new job, back to full time and I am not sure I am well enough, but oh well I'm in now. Anniversary party for my in-laws. Trip to Disney. Both of these are worth entries of there own.
I was on dificid for the c.diff, and while that is also another story, it did seem to weaken the blasto. Was not convinced it took care of the c.diff and I decided to try a probiotic yet again. I decided to mix it up hoping to mix the gut population. I alternated between natren's healthy trinity, align and culturelle. I knew right when the healthy trinity hit my hot spot. And Align would give a sort of announcment that it was now entering my colon. Culturelle gave only the slightest hint of arrival at my trigger spot.
I went into a c.diff or what seemed more like a c.diff event a week and half ago and decided to pound them until I could not handle it. And a very interesting thing happened. I was taking 8,9,10 a day and my d stopped. I still had back pain, joint pain, toxins circulating through my veins but the d stopped.
And I was feeling better. Ate a hamburger, and cucumber and tomotoes and cucumber again.
And too many chocolate chip cookies and keebler stipped cookie and then entenmanns was buy one get one free....so I bought the raspberry danish for me and donuts for my boys.
so for what ever reason on Sunday I ate half the danish. and I did not have my typical 4 hours trigger. But the next morning I went into a blasto episode. and the probiotics today set me off and the cookie set me off and now full blown blasto.
all from a danish. Really I would have no problem giving it up forever. If I never ate another one so be it, if I could have fruit and carrots and salad dressing etc
I am so sick and tired of this.
Really when is the medical community going to admit it make people sick and find the treatment!
I was on dificid for the c.diff, and while that is also another story, it did seem to weaken the blasto. Was not convinced it took care of the c.diff and I decided to try a probiotic yet again. I decided to mix it up hoping to mix the gut population. I alternated between natren's healthy trinity, align and culturelle. I knew right when the healthy trinity hit my hot spot. And Align would give a sort of announcment that it was now entering my colon. Culturelle gave only the slightest hint of arrival at my trigger spot.
I went into a c.diff or what seemed more like a c.diff event a week and half ago and decided to pound them until I could not handle it. And a very interesting thing happened. I was taking 8,9,10 a day and my d stopped. I still had back pain, joint pain, toxins circulating through my veins but the d stopped.
And I was feeling better. Ate a hamburger, and cucumber and tomotoes and cucumber again.
And too many chocolate chip cookies and keebler stipped cookie and then entenmanns was buy one get one free....so I bought the raspberry danish for me and donuts for my boys.
so for what ever reason on Sunday I ate half the danish. and I did not have my typical 4 hours trigger. But the next morning I went into a blasto episode. and the probiotics today set me off and the cookie set me off and now full blown blasto.
all from a danish. Really I would have no problem giving it up forever. If I never ate another one so be it, if I could have fruit and carrots and salad dressing etc
I am so sick and tired of this.
Really when is the medical community going to admit it make people sick and find the treatment!
Subscribe to:
Comments (Atom)