symptoms when I "piss" blasto off

First if any of you fellow suffers (plug in any adjective you like to describe your current situation with blasto) also have c.diff.....please let me know how you mange both infections. I just go back and forth from one to the other being active.

So I have, over 18 years now, developed some very predictable symptoms. Sometimes it is very hard to tell between the two infections because there is overlap but most of the time they are distinguishable.  And night sweats is one that solely belongs to blasto. I know when I have agitated it and it produces night sweats that soak the back of my neck and my hair. I wake up jolted and feel so agitated. And then I feel cold on the back of my neck and when I reach around I am soaked.

Another bizarre symptom I get are blood blisters in my mouth. I have these huge crazy blood blisters and I just wonder if the strain of this bad bug I have is actually somehow viral as well as parasitic. Or maybe it an undiagnosed co-infection. I have been tested so many ways for so many different things and I have been on so many round of drugs and herbs to clear infections that I have a hard time thinking it is a co-infection. PLus the only things showing up over and over is blasto.

Of course there is the d when I eat fructose, the cramping when I eat sugar and the excessive gas when I eat carbs. And the bloating when it is really in charge.

I also have these crazy body shakes which I also get with c.diff and make it hard to tell which one with just the symptom singled out. The shakes are more like an overload of the toxins that are then coursing through my veins. I keep saying to myself I need to get on some milk thistle. The shakes keep me up all night

An interesting theory in my household is the effect stress has on me. I get so angry at the medical system when they blame stress. And while I do believe stress can have short term acute effects like d or tummy issues and headaches, and while I do believe constant stress can have long term effects on heart and immune system, I absolutely do not believe that stress causes a parasitic infection. I mean this is just no way stress materializes another living organism inside your body whose sole purpose is to compromise your body so it survives.

Why can't we get proper treatment

Happy Friday. The year is 2017 and I have been doing some google searching about how to get the meds I need to kill this horrible parasite so I can have a different life. Different from the lst 18 years where I have been sick from this unbelievable disease causing parasite. I happen to live in the US It amazes me that other countries and I mean countries where the worldwide pharmaceuticals have R&D, consumer health and manufacturing sites. They produce the same drugs under different names distributed to different countries and yet the same treatment available in one location is not available in another. country. The US does not have any reciprocity with any of these other countries. And while I appreciate the higher level function of this governmental organization to protect the greater population, it is ridiculous that these meds are not allowed in the US. These are possible treatments that would improve our lives, give us better quality living, increase our productivity for the companies we work for, reduce our spending on health care, all good things.

Why not let the population who is sick with this have access to the medicines that can potentially kill it?
Just a thought.

My Experiment with a Heat Lamp

Hello Fellow Blasto Suffers, this bug is just awful isn't it!!?? I had done some research a bit ago about nutritional balancing. For those of you unfamiliar this is not just following the food pyramid or cutting out sweets et. It is a sorta science in taking supplements and eating a diet the combines the right combination of vitamins and minerals so they are working in balance within your body. part of the comprehensive program includes detoxifying. And one of the way to detoxify ifs with a sauna, to be specific an infrared sauna to sweat out toxins. So I figure nothing to loose everything to gain and invest in a beautiful USA made portable infrared sauna and a single infrared heat lamp that I can concentrate. Well in the midst of all this research is data suggesting that pathogens don't survive under the waves of the red heat lamp. So I spend dedicated time each day for a week or maybe more like 9 days with the single heat amp targeted at my colon. And ever so slowly things start to change, but . I feel a lot of colon twitching and them serious abdominal pain and tehn bloating and tons of pressure. And then crzainess with my bowels. It turns out I had actually made my infection worse with this test of the theory of infrared heat lamps. My theory is similar to that of the studies out there on flagyl.

Wow I was just doing my usual ealry morning pacing when I get an attack and can't believe how fast it becomes light out. I have been in this situation doznes of times over the years and I am always amazed at the early morning twilight when it twinkles and then so quickly becomes bright with the days light.

Back to the heat lamp. For my strain of blasto it made it sorse. It was like it was under attack and disable some of teh bug in one of its stages but all that did was make the rest retreat into thier harc shell cyst and then start reproducing. The abdominal pain was serious. Ad my entire colon was like one huge sausage roll and then of course came the cramping, gut pain, d etc. And it took days for ti to all settle back down.

I really believe from personal experimentation, that unless you are lucky to have the arsenal of combination that is fatal to all stages of the mother of all parasites, that it is intelligent enough to have a survival mechanics that allows it to hide in its cyst form an, protecting itself and then reproducng making you sicker.

I am always sicker when I try something that doesn't work.

In these situation where I have angered it, I have different symptoms then when I eat something that gives me an attack like a piece of fruit, or when I just slow down on a certain supplement. Some supplements just reduce the infection and then it builds back up. Other treatment strategies give me a different set of symptoms as though I have angered the beast instead of reduced th infection.

The heat lamp angered it.

infrared light makes blasto worse

So I am up at now 5:30 am with a flare from taking the supplement florastor. I seem to have a bad as in infection as ever. I was thinking about all the coffee cake and the cookies I ate a few months ago but now I am remembering the infrared lamp. So I have read that infrared sauna's can be powerful approaches to an overall health program including trying to get rid of parasites. They typically don't like the raise in temperature and the red light wavelenths are supposed to increase oxygen circulation or something like that. So in addition to an infrared sauna I have a single heat lamp.

I used that single heat lamp right on my colon for about 20 minute sessions for at least a week straight. Who really knows what happened. I would love to be able to culture my own bug and view it under microscope to see. But I swear it actually increased the infection. I have been in trouble pretty much every day since. Huge bowel issue and all the horrible feelings with the joint pain, back sensations, stirred up hot spots etc.

It is just a mess isn't it? This is such a poor quality of life. Being allergic to chocolate or gluten would be a cake walk right now compared to living with blasto.

So I warn against the focused infrared heat lamp. It really only made my infection worse and worse. I think that is why the standards that have worked in the past at reducing the infection are not helping me much.

I would love to hear if anyone has had any similar experiences to mine. So after having been up a few hours feeling like I would just literally fall apart on the bathroom floor and has I pace the kitchen I need to eat chicken.

Chicken chicken chicken - all I live on.

what to title this post

Wow, Its been a year since I actually posed something. Yes I have a few posts in draft but nothing out. You'd think that was because I had a good year, but not really. I started out on a nutritional balancing journey this time last year only to discover that I did not tolerate much of the supplements. I wish the kelp did not bother this mother of a bug but it set me off over and over. So I drifted away from that even though I am sure mineral balancing is a part of the puzzle. I bought a beautiful infrared sauna and stuck with that for some time too, but stopped when summer came and it was so hot outside it was hard to sweat inside.

But what I have been taking pretty consistent has been monolaurin. There are quite a few studies on the effects of it killing blasto. It absolutely reduces my load, or at least it used to. I ate really bad a few months ago eating coffee cake and cookies over and over again. And the stupid bug seems to have morphed again. The monolauirn seems to have disturbed my gut flora and had c.diff symptoms again. So I started a round of dificid, which in the past had worked great at reducing the blasto infection. And so it did again but seems to have still morphed again. I used to always tolerate florastor but I am coming of the dificid while I continued the monolaurin and decided to add the florastor in. Well I am in the midst of a 4 hour trigger.

I should explain that I have such a huge or concentrated parasite colony and it takes 4 hours for my system to move food through to the host spot. When I eat something that will piss off or feed the bugs I have a huge attack, Symptoms vary from spasm-ing to waves of feeling so sick to shakes, sweats, and of course d. It is just lovely. I have learned over time how consistent these reactions can be. Supplement or food that bothers the blasto such as bread or carrotts (yes to high in sugar content)

Today I woke up at 3 am with joint pain, back creeping and shakes so bad I feel like I am out of my body. Ugh here I go again. And yes issues with my colon. and now my hot spots are super hot.

So I am almost just beside myself in this situation. I just spent 200 dollars this morning at my functional doctors office getting more dificid to try and treat the blasto but now I am just not sure. I always have used typing to help brign on repetitive motion that does help to calm me down. So does pacing around my house. I am at the end of my rope with this. What can I do to try and get rid of this bug. Guess I need to try the rife machine again and rotate a few of the herbs in to see if I can knock it down.

what else hasn't worked

I have so many posts started that I never post because I use this to vent as much as tell my story. I have tried so many things in the past 2 years that have not worked.

Bee Pollen. Sounds like as good a theory as any. Some specific enzyme helps breakdown the biofilm or weakens the buggers or some other thing. So I tried bee pollen. Researched what brands to take, how to ensure it was good quality, where the best bee pollen in the world can be found etc. At the time I was even getting routine body work like reikki and lymph massages etc and the therapist lives on a farm and has bee hives. She was even willing to bring me the bee pollen. Well it just made me sick. Sick and sicker. If you look up the nutritional data on bee pollen it actually has a pretty high carb content. It set me off everytime.

Which leads me to the question of die off or feeding reaction. I think I have lived with this bugger long enough and tried enough things that I know if it is an attack or die off but every now and then I wonder. For  me die off is d, cramping, pain at my two hot spots. An attack always comes with more. Feeling beyond sick, stomach pains, multiple episodes of d, feeling weak and nauseous and super light headed.

I tried alinia for almost 21 days. Saw a doc (nutrionist who consulted with some well known gastro's) who said single therapy of this drug for 21 days would do the job. I can't even begin to describe how sick I became. Lost a pound a day. And in the end made the infection even worse. Now I have 2 hot spots or colonies I can actually feel and not just the one.

Rain Forest A-P Amazon herbal blend. This was amazing last fall and in December I was able to eat cauliflower and even red potatoes. So good that I tapered off and stopped. And back worse then ever I use to be able to take some herb or other and knock it down and stay status quo. Now this monster has adapted to the point where when I taper off anything and some times before it just becomes worse.

Went back to my rife machine for a bit with no real change.

When I take the A-P I think I get die off but I never seem to improve.

Then I tried momolaurin. And I thought I had found the answer. And maybe it would have been the answer if I had stayed on it longer and had starved myself and eaten nothing. But it reduced the infection almost immediately and I started to binge eat. I have often said to my husband that if I ever clear this infection I am either going to gain 100 pounds or become bulimic because I have been deprived of taste and texture (oh yeah and nutrients) for so long I am not going to be able to stop. So I went on binges and ate hershey kiss after kiss. And then I wanted chocolate chip cookies. Not from a store as I knew the preservatives would set me off but homemade where I controlled the ingredients. So I made batch after batch for several weeks in a row and slowly built the infection back up to where I tolerated nothing.

I have also read about a possible connection to protease and a theory behind protease inhibitors. Well the only natural anything I can find connect to protease inhibitor is ancillin found in garlic. So I again researched and found a product that is buffered so it makes it past the stomach and is also supposed ot be time released. I have been on it for just over a week and at first I thought ok going good. I would take it and have an issue. Usually moving my bowels but other symptoms like pain at the 2 hot spots and nausea. So I kept taking it. And now as I sit here closing in on midnight in a full all out flare I think it was a bad idea. By now I should have had a noticeable step reduction in symptoms.

I can't believe how bad this has become. One other reason I do not think it is die off is because with die off, like oil of oregano or ozone the symptoms are just different.

Oh yeah I forgot to mention ozone. Well maybe I did in another post but I don't think so. I tried ozone and had great die off but I just could not afford it frequently enough to make a real dent. I do however think it could be combined with other treatments to create a comprehensive treatment plan. Be prepared for cost and time though.

OMG - ozone might not have been the best idea

Aug 2015
And here I am approaching my 17th anniversary with this monster. I can't tell you the exact date just sometime between my child's birth and first birthday, closer to the fall of that year I think.

I have many posts in drafts and maybe I'll just publish them as is but this is about today. Been up since 5 and am having a huge huge attack. These days, as in the last year or so, they are not always 4 hour trigger attacks, but sometimes 5 or 6 hours later.

I ate a tomato last night with my 10:00 evening meal. Tomatoes used to be one of the foods I could tolerate. But not any more.

I have tried several things over the past few years and my latest backfired. I have read other testomonials when people have stopped an herb or finish the meds the infection seems to come back worse and boy is that the case with me.

So I started on these herbs last Nov. I had done a program from Healing Within many years ago and I stayed on the herbs for a year because they held it at bay. I found a new doc in chicago and he thought mold was one of my problems and wanted me to go off all herbs so he could accurately test me. Anyway ( long stories I know but isn't that the case with any of us with this terrible parsite inflicted disease), I called them again to see if they had anything new. They have some minor success with blasto treatment. So I went on herbs from "rain forest pharmacy"; A-P and Simarouba. Amazing. They were so clearly potent and by the holiday's I was eating cauliflower and red potatoes with garlic and rosemary - heaven really.

Mean while my functional medicine doctor has been studying ozone therapy. The vast majority of his patients are lyme patients. So I research and read and decide to give it a try and from the first treatment I have die off. I did over 2 dozen and each time like clock work 48 hours later I had serious dies off. But I have extremely low blood pressure and only one vein for the injections so had to stop. I had no adverse issues stopping probably because the dosing had been so small and infrequent.

We discussed treatments where I could chose from either rectal insulflation or vaginally. And so after buying the equipment off I go. I opted for vaginally and in the beginning had die off. This went on for a few weeks and then I had nothing. No twinge, no intestinal movement like it was being annoyed, no cramping or hot spot twinges. And then it really seemed like I was actually getting worse.

I stopped 5 days ago and now I am sicker than I have ever been. I tolerate nothing but chicken and pumpkin and zucchini. I have sat in parking lots this week and cried because grocery stores are out of zucchini and it is all I can eat. I have also gone back to the herbs and while they still seem to bother it, it is clear that they are not nearly as potent. Time to try and find something else. For today though I am going to bring oil of oregano back to see what happens. 10 years ago it was my golden ticket for a year.

I know everyone with blasto seems to have a variation of symptoms and have had it for different periods of time and have different strains etc. It is almost like our finger prints - unique to each one of us. But I am in the Ozone does not work camp. I even read an actual scientific article that not all life stages were susceptible to ozone and it would basically be able to stay put until the ozone dissipated.

Who knows. At some point I think I might start trying to perform research myself.

Until next time - here's to the hopes that you can eat more than chicken today and to having enough faith to believe in healing